SF 393 (LSB 1177SV (4) 85)

SENATE FILE 393

BY  COMMITTEE ON HUMAN RESOURCES

(SUCCESSOR TO SSB 1001)

(As Amended and Passed by the Senate 2013-03-25)

A BILL FOR

An Act relating to prenatal care including required critical congenital heart disease screening for newborns as part of the state’s newborn screening panel.
BE IT ENACTED BY THE GENERAL ASSEMBLY OF THE STATE OF IOWA:

    Section 1.  NEW SECTION.  136A.5A  Newborn critical congenital heart disease screening.
   1.  Each newborn born in this state shall receive a critical congenital heart disease screening by pulse oximetry or other means as determined by rule, in conjunction with the metabolic screening required pursuant to section 136A.5.
   2.  An attending health care provider shall ensure that every newborn under the provider’s care receives the critical congenital heart disease screening.
   3.  This section does not apply if a parent objects to the screening. If a parent objects to the screening of a newborn, the attending health care provider shall document the refusal in the newborn’s medical record and shall obtain a written refusal from the parent and report the refusal to the department.
   4.  Notwithstanding any provision to the contrary, the results of each newborn’s critical congenital heart disease screening shall only be reported in a manner consistent with the reporting of the results of metabolic screenings pursuant to section 136A.5 if funding is available for implementation of the reporting requirement.
   5.  This section shall be administered in accordance with rules adopted pursuant to section 136A.8.
    Sec. 2.  NEWBORN CRITICAL CONGENITAL HEART DISEASE SCREENING.  Notwithstanding any provision to the contrary relating to the newborn screening policy pursuant to 641 IAC 4.3(1), critical congenital heart disease screening shall be included in the state’s newborn screening panel as included in the recommended uniform screening panel as approved by the United States secretary of health and human services. The center for congenital and inherited disorders advisory committee shall make recommendations regarding implementation of the screening and the center for congenital and inherited disorders shall adopt rules as necessary to implement the screening. However, reporting of the results of each newborn’s critical congenital heart disease screening shall not be required unless funding is available for implementation of the reporting requirement.