HR 106 (LSB 6281YH (3) 90)

HOUSE RESOLUTION NO. 106

BY  NORDMAN

A Resolution designating February 2024 as Marfan Syndrome Awareness Month.

   WHEREAS, Marfan syndrome is a genetic disorder that affects the body’s connective tissue; and
   WHEREAS, connective tissue allows bones, ligaments, muscles, blood vessels, and heart valves to stay strong and flexible; and
   WHEREAS, approximately 1 in 5,000 people have Marfan syndrome and the genetic disorder affects men and women of all races and ethnic groups; and
   WHEREAS, roughly three out of every four people with Marfan syndrome inherit the genetic disorder from a parent; and
   WHEREAS, recognizing the signs and symptoms of Marfan syndrome can save lives, but the signs and symptoms of the genetic disorder vary greatly depending on the part of the body affected; and
   WHEREAS, the most common symptoms of Marfan syndrome include disproportionately long arms, legs, and fingers, an indented chest bone, an abnormally curved spine, and heart murmurs; and
   WHEREAS, there is no cure for Marfan syndrome, there are various treatment options, including medication, limitations on physical activity, surgery, and methods to prevent or manage complications of the genetic disorder; and
   WHEREAS, organizations like the Michael Henter Foundation are raising awareness of Marfan syndrome by telling the story of Michael’s life and the impact he had on so many; and
   WHEREAS, it is imperative that residents of this state are aware of Marfan syndrome in order to promote early diagnosis and the discovery of a cure; NOW THEREFORE,

   BE IT RESOLVED BY THE HOUSE OF REPRESENTATIVES, That the House of Representatives designates the month of February 2024 as Marfan Syndrome Awareness Month in Iowa; and

   BE IT FURTHER RESOLVED, That the House of Representatives recognizes the importance of spreading awareness about Marfan syndrome and encouraging research opportunities to find a cure for the genetic disorder; and
   BE IT FURTHER RESOLVED, That the House of Representatives respectfully requests the Chief Clerk of the House of Representatives to transmit a copy of this resolution to the Michael Henter Foundation and the Marfan Foundation.