S.F. 51 Section 1. NEW SECTION . 136A.5B Cytomegalovirus public 1 health initiative. 2 1. In accordance with the duties prescribed in section 3 136A.3, the center for congenital and inherited disorders 4 shall collaborate with state and local health agencies 5 and other public and private organizations to develop and 6 publish or approve and publish informational materials to 7 educate and raise awareness of cytomegalovirus and congenital 8 cytomegalovirus among women who may become pregnant, expectant 9 parents, parents of infants, attending health care providers, 10 and others, as appropriate. The materials shall include 11 information regarding all of the following: 12 a. The incidence of cytomegalovirus and congenital 13 cytomegalovirus. 14 b. The transmission of cytomegalovirus to a pregnant woman 15 or a woman who may become pregnant. 16 c. Birth defects caused by congenital cytomegalovirus. 17 d. Methods of diagnosing congenital cytomegalovirus. 18 e. Available preventive measures to avoid cytomegalovirus 19 infection by women who are pregnant or who may become pregnant. 20 f. Early interventions, treatment, and services available 21 for children diagnosed with congenital cytomegalovirus. 22 2. An attending health care provider shall provide to a 23 pregnant woman during the first trimester of the pregnancy the 24 informational materials published under this subsection. The 25 center for congenital and inherited disorders shall make the 26 informational materials available to attending health care 27 providers upon request. 28 3. The department shall publish the informational 29 materials on its internet site and shall specifically make the 30 informational materials available to child care facilities and 31 child care homes as defined in section 237A.1, school nurses, 32 hospitals, attending health care providers, and other health 33 care providers offering care to pregnant women and infants. 34 Sec. 2. Section 135.131, Code 2017, is amended by adding the 35 -1- LSB 1667XS (2) 87 pf/nh 1/ 3

S.F. 51 following new subsection: 1 NEW SUBSECTION . 8A. a. If the results of the newborn 2 hearing screening performed under this section demonstrate that 3 the newborn has hearing loss, the birthing hospital, birth 4 center, physician, or other health care professional required 5 to ensure that the hearing screening is performed on the 6 newborn under this section, shall do all of the following: 7 (1) Test the newborn or ensure that the newborn is tested 8 for congenital cytomegalovirus before the newborn is twenty-one 9 days of age. 10 (2) Provide information to the parent of the newborn 11 including information regarding the birth defects caused by 12 congenital cytomegalovirus and early intervention and treatment 13 resources and services available for children diagnosed with 14 congenital cytomegalovirus. 15 b. This subsection shall not apply if the parent objects to 16 the testing. If a parent objects to the testing, the birthing 17 hospital, birth center, physician, or other health care 18 professional required to test or to ensure that the newborn is 19 tested for congenital cytomegalovirus under this subsection 20 shall obtain a written refusal from the parent, shall document 21 the refusal in the newborn’s or infant’s medical record, and 22 shall report the refusal to the department in the manner 23 prescribed by rule of the department. 24 EXPLANATION 25 The inclusion of this explanation does not constitute agreement with 26 the explanation’s substance by the members of the general assembly. 27 This bill requires the center for congenital and inherited 28 disorders to collaborate with state and local health agencies 29 and other public and private organizations to develop and 30 publish or approve and publish informational materials to 31 educate and raise awareness of cytomegalovirus and congenital 32 cytomegalovirus among women who may become pregnant, expectant 33 parents, parents of infants, attending health care providers, 34 and others, as appropriate. The bill specifies the information 35 -2- LSB 1667XS (2) 87 pf/nh 2/ 3

S.F. 51 to be included in the materials. The bill requires that 1 an attending health care provider (defined as a licensed 2 physician, nurse practitioner, certified nurse midwife, 3 or physician assistant) shall provide the informational 4 materials to a pregnant woman during the first trimester of the 5 pregnancy. The center for congenital and inherited disorders 6 shall make the materials available to attending health care 7 providers upon request. 8 The bill also directs the department of public health to 9 publish the informational materials on its internet site and 10 to specifically make the materials available to child care 11 facilities and child care homes, school nurses, hospitals, 12 attending health care providers, and other health care 13 professionals offering care to pregnant women and infants. 14 The bill also requires that if the results of a newborn’s 15 hearing screening demonstrate that the newborn has hearing 16 loss, the birthing hospital, birth center, physician, or 17 other health care professional required to ensure that the 18 hearing screening is performed on the newborn, shall test the 19 newborn or ensure that the newborn is tested for congenital 20 cytomegalovirus before the newborn is 21 days of age and 21 provide information to the parent of the newborn regarding 22 congenital cytomegalovirus. The congenital cytomegalovirus 23 testing requirement does not apply if the parent objects to the 24 testing. If a parent objects, the birthing hospital, birth 25 center, physician, or other health care professional shall 26 obtain a written refusal from the parent, document the refusal 27 in the newborn’s or infant’s medical record, and report the 28 refusal to the department of public health. 29 -3- LSB 1667XS (2) 87 pf/nh 3/ 3