S.F. 269 Section 1. NEW SECTION . 135P.1 Definitions. 1 As used in this chapter, unless the context otherwise 2 requires: 3 1. “Alzheimer’s disease” or “Alzheimer’s” means a 4 progressive, degenerative, fatal disorder that results in loss 5 of memory, loss of thinking and language skills, and behavioral 6 changes. “Alzheimer’s disease” includes related dementias 7 including vascular dementia, Parkinson’s disease, dementia with 8 Lewy bodies, frontotemporal dementia, Crutzfeldt-Jakob disease, 9 normal pressure hydrocephalus, and mixed dementia. 10 2. “Department” means the department of public health. 11 Sec. 2. NEW SECTION . 135P.2 Alzheimer’s disease —— 12 state-level coordination and comprehensive response strategy. 13 1. The department shall develop and administer, and 14 provide for state-level coordination of, a comprehensive 15 Alzheimer’s disease response strategy in accordance with the 16 recommendations of the stakeholder workgroup convened pursuant 17 to 2011 Iowa Acts, chapter 61. The response strategy shall 18 include development and monitoring of short-term and long-term 19 objectives and action steps to ensure that individuals with 20 Alzheimer’s disease have access to the highest quality and 21 most appropriate care at all stages of the disease and in 22 all settings across the service and supports continuum. The 23 response strategy may include prioritization of objectives 24 and action steps to most efficiently utilize resources and 25 funding. The department shall update the initial response 26 strategy biennially and shall submit a progress report annually 27 in January to the governor and the general assembly. 28 2. In providing state-level coordination, the department 29 shall integrate public and private resources and programs, 30 reduce duplication, evaluate programs and services to ensure 31 that evidence-based, high-quality programs and services are 32 available to maximize the positive impact for individuals with 33 Alzheimer’s and their families and caregivers, and promote 34 public awareness. 35 -1- LSB 2080SV (2) 85 pf/nh 1/ 5

S.F. 269 3. In developing the comprehensive Alzheimer’s disease 1 response strategy, the department shall do all of the 2 following: 3 a. Establish an Alzheimer’s disease coordinator position 4 in the department in a manner similar to those positions 5 that address other chronic conditions in the state. The 6 coordinator, in partnership with public and private entities 7 and the multidisciplinary advisory council convened pursuant to 8 paragraph “b” , shall do all of the following: 9 (1) Implement the recommendations of the Alzheimer’s 10 disease stakeholder workgroup convened pursuant to 2011 Iowa 11 Acts, chapter 61, and establish standards for the comprehensive 12 Alzheimer’s disease response strategy. 13 (2) Inform, educate, and empower the public regarding the 14 impact of Alzheimer’s disease, in order to increase awareness 15 of the disease and in particular the benefits of early 16 detection, while working to decrease the stigma associated with 17 Alzheimer’s disease. 18 (3) Monitor the prevalence of Alzheimer’s disease and 19 cognitive impairment in the state through data collection and 20 coordination efforts. Such data shall be made available to 21 and used to assist public and private efforts in developing 22 evidence-based programs and policies that address Alzheimer’s 23 disease. 24 (4) Evaluate, and promote the improved effectiveness, 25 accessibility, and quality of, clinical and population-based 26 Alzheimer’s services. The evaluation and promotion efforts 27 shall include coordination of services to reach rural and 28 underserved areas of the state. 29 (5) Ensure a competent public and private sector workforce 30 specific to the challenges of Alzheimer’s disease. The effort 31 shall include coordinating existing state efforts to develop, 32 implement, and evaluate curricula and training requirements 33 for providers of services who interact with individuals with 34 Alzheimer’s disease. 35 -2- LSB 2080SV (2) 85 pf/nh 2/ 5

S.F. 269 (6) Act as a liaison to the aging and disabilities resource 1 centers, area agencies on aging, Alzheimer’s association 2 chapters, the health and long-term care access advisory council 3 created by the department to implement the directives of 4 sections 135.163 and 135.164, and other entities to ensure 5 Alzheimer’s disease is appropriately addressed in the state. 6 (7) Secure public and private funding relating to dementia 7 to fulfill the duties specified under this chapter. 8 b. Convene a multidisciplinary advisory council. The 9 council shall assist and advise the department and the 10 coordinator; develop partnerships to provide coordination, 11 collaboration, and support for Alzheimer’s-related services 12 and programs throughout the state; and advocate on behalf of 13 persons with Alzheimer’s disease and their families. The 14 advisory council shall, at a minimum, include representation 15 from individuals with Alzheimer’s disease and their families; 16 caregivers and other providers of services and supports; 17 medical providers including primary and specialty care 18 providers, which shall include geriatricians, neurologists, 19 and others with expertise in Alzheimer’s disease; the 20 Alzheimer’s association; community-based organizations and 21 other organizations with interest or expertise in Alzheimer’s 22 disease; academic institutions and programs with a focus 23 on Alzheimer’s disease and dementia; and appropriate state 24 agencies including but not limited to the department on 25 aging, the department of human services, the department of 26 inspections and appeals, the department of public safety, and 27 the department of workforce development. The department shall 28 enlist private entities in providing staff support for the 29 council. 30 Sec. 3. REPEAL. Section 135.171, Code 2013, is repealed. 31 Sec. 4. INCORPORATION OF EXISTING STATE DUTIES. The 32 department of public health shall incorporate the requirements 33 specified in section 135.171, Code 2013, into the comprehensive 34 Alzheimer’s disease strategy developed and administered 35 -3- LSB 2080SV (2) 85 pf/nh 3/ 5

S.F. 269 pursuant to this Act. 1 EXPLANATION 2 This bill relates to state-level coordination of and a 3 comprehensive response strategy for Alzheimer’s disease. The 4 bill creates a new Code chapter, Code chapter 135P, to direct 5 that the department of public health (DPH) is to develop and 6 administer, and provide for state-level coordination of, a 7 comprehensive Alzheimer’s disease response strategy. The bill 8 provides a definition of Alzheimer’s disease which includes 9 related dementias. 10 The bill directs DPH to develop and administer a 11 comprehensive Alzheimer’s disease response strategy, to update 12 the strategy biennially, and to submit a progress report 13 annually in January to the governor and the general assembly. 14 The response strategy may include prioritization of objectives 15 and action steps to most efficiently utilize resources and 16 funding. 17 In providing state-level coordination, DPH is directed 18 to integrate public and private resources and programs, 19 reduce duplication, evaluate programs and services to ensure 20 that evidence-based, high-quality programs and services are 21 available to maximize the positive impact for individuals with 22 Alzheimer’s and their families and caregivers, and promote 23 public awareness. 24 In developing and administering the comprehensive 25 Alzheimer’s disease response strategy, DPH is directed to 26 establish an Alzheimer’s disease coordinator within the 27 department and to convene a multidisciplinary advisory council. 28 The coordinator, in partnership with public and private 29 entities and the multidisciplinary advisory council, is 30 directed to implement the recommendations of the 2011 31 Alzheimer’s disease stakeholder workgroup, and establish 32 standards for the comprehensive Alzheimer’s disease response 33 strategy; inform, educate, and empower the public regarding 34 the impact of Alzheimer’s disease, in order to increase 35 -4- LSB 2080SV (2) 85 pf/nh 4/ 5

S.F. 269 awareness of the disease and in particular the benefits 1 of early detection, while working to decrease the stigma 2 associated with Alzheimer’s disease; monitor the prevalence 3 of Alzheimer’s disease and cognitive impairment in the state 4 through data collection and coordination efforts and make 5 the data available to assist public and private efforts in 6 developing evidence-based programs and policies that address 7 Alzheimer’s disease; evaluate, and promote the improved 8 effectiveness, accessibility and quality of, clinical and 9 population-based Alzheimer’s services, including coordination 10 of services to reach rural and underserved areas of the 11 state; ensure a competent public and private sector workforce 12 specific to the challenges of Alzheimer’s disease including 13 through coordination of state efforts regarding curricula and 14 training requirements for providers of services who interact 15 with individuals with Alzheimer’s disease; act as a liaison to 16 various entities to ensure Alzheimer’s disease is appropriately 17 addressed in the state; and secure public and private funding 18 relating to dementia to fulfill the duties specified under this 19 chapter. 20 The multidisciplinary advisory council is to assist and 21 advise the department and the coordinator; develop partnerships 22 related to Alzheimer’s-related services and programs throughout 23 the state; and advocate on behalf of persons with Alzheimer’s 24 disease and their families. The bill specifies the minimum 25 representation to be included in the advisory council. 26 The bill repeals the Code section relating to a directive 27 to DPH to analyze Iowa’s population to determine the existing 28 service utilization and future service needs of persons with 29 Alzheimer’s disease and similar forms of irreversible dementia 30 (Code section 135.171). DPH is required to incorporate this 31 directive into the comprehensive Alzheimer’s disease response 32 strategy developed and administered under the bill. 33 -5- LSB 2080SV (2) 85 pf/nh 5/ 5