Senate Concurrent Resolution 6 - Introduced PAG LIN S.C.R. ________ H.C.R. ________ 1 1 SENATE CONCURRENT RESOLUTION NO. 1 2 BY BLACK and ZAUN 1 3 A Concurrent Resolution requesting the establishment 1 4 of an interim study committee by the legislative 1 5 council to conduct a study of issues related to 1 6 amyotrophic lateral sclerosis. 1 7 WHEREAS, the State recognizes that amyotrophic 1 8 lateral sclerosis (ALS), also known as "Lou Gehrig's 1 9 disease", is a fatal neurodegenerative disease 1 10 characterized by degeneration of cell bodies of the 1 11 lower motor neurons in the gray matter of the anterior 1 12 horns of the spinal cord; and 1 13 WHEREAS, research indicates that military veterans 1 14 are at a 50 percent greater risk of developing ALS 1 15 than those who have not served in the military; and 1 16 WHEREAS, concern has also been expressed by 1 17 citizens of this state regarding long=term care and 1 18 oversight of patients suffering from ALS; and 1 19 WHEREAS, the general assembly believes that a 1 20 comprehensive study of issues related to ALS is 1 21 necessary and in the best interest of the citizens of 1 22 the State of Iowa; NOW THEREFORE, 1 23 BE IT RESOLVED BY THE SENATE, THE HOUSE OF 1 24 REPRESENTATIVES CONCURRING, That the legislative 1 25 council is requested to establish an interim study 1 26 committee to conduct a comprehensive study of issues 1 27 concerning the long=term care and oversight of 1 28 patients suffering from ALS; and 1 29 BE IT FURTHER RESOLVED, That the interim study 1 30 committee should be composed of nine legislative 2 1 members consisting of members from both political 2 2 parties and both houses of the general assembly, in 2 3 addition to four other members consisting of a 2 4 neurologist, a person affected by ALS, a social 2 5 worker, and a representative from a national voluntary 2 6 health association that focuses solely on ALS and that 2 7 has demonstrated experience in ALS research, care, and 2 8 patient services; and 2 9 BE IT FURTHER RESOLVED, That the committee shall be 2 10 staffed by the legislative services agency and shall 2 11 issue its report of recommendations by January 1, 2 12 2008. 2 13 LSB 2908SS 82 2 14 jr:nh/es/88.1