Senate Resolution 105 - Introduced SENATE RESOLUTION NO. 105 BY SCHNEIDER A Resolution to declare March 11, 2016, as 1 Fibromuscular Dysplasia Awareness Day. 2 WHEREAS, Fibromuscular Dysplasia (FMD) is a disease 3 that causes abnormal cell growth of the arterial wall 4 leading to areas of narrowing, beading, aneurysms, and 5 tears of the arterial wall; and 6 WHEREAS, although FMD was first diagnosed in 1938, 7 until recently there has been very little progress in 8 understanding the disease, there is no known cause or 9 cure for the disease, and there are no set protocols 10 to treat the disease; and 11 WHEREAS, even though FMD has always been considered 12 and is still classified as a rare disease, many 13 researchers now believe FMD to be underdiagnosed 14 with some data suggesting that 4 to 5 percent of the 15 population may be affected by the disease; and 16 WHEREAS, while men and children may also have 17 FMD, 90 percent of the patients affected by FMD are 18 women; and 19 WHEREAS, although there are several different 20 classifications of FMD, the two most common types are 21 medial fibroplasia and intimal fibroplasia, with some 22 patients presenting with both types of the disease, and 23 different populations being diagnosed with different 24 types of the disease; and 25 WHEREAS, unlike the adult population, children tend 26 to be diagnosed with intimal fibroplasia, which can be 27 more aggressive; and 28 -1- LSB 5908XS (4) 86 pf/nh 1/ 3

S.R. 105 WHEREAS, FMD may often go undetected since some 1 patients with FMD present with symptoms common to 2 other disorders such as hypertension, headaches, and 3 dizziness; others present with transient ischemic 4 attack (TIA) or stroke, tearing of an artery, aneurysm, 5 swooshing noise in the ear, and renal infarction; 6 children may present with basic symptoms such as high 7 blood pressure, headaches, insomnia, fatigue, and 8 abdominal pain; and others may be asymptomatic; and 9 WHEREAS, those with FMD may have difficulty in 10 obtaining an accurate and timely diagnosis with the 11 common delay from onset of symptoms to diagnosis being 12 five years, or may be misdiagnosed leading to severe 13 consequences and disability; and 14 WHEREAS, in addition to a lack of diagnosis or 15 misdiagnosis, individuals and families affected by 16 FMD often experience isolation, the lack of optimal 17 treatment options, and inaccuracy of information about 18 the disease which, prior to the release of the newest 19 data, inaccurately indicated that 75 percent of FMD 20 cases affected the renal arteries; and 21 WHEREAS, while many rare diseases are relatively 22 well-known, FMD is not well-known by the public or 23 medical community resulting in patients and their 24 families bearing a large share of the burden for 25 educating others, including their own physicians, and 26 raising funds for awareness and research; and 27 WHEREAS, the Fibromuscular Dysplasia Society 28 of America (FMDSA) was founded on March 11, 2003, 29 and, over the past 13 years, has been active and 30 -2- LSB 5908XS (4) 86 pf/nh 2/ 3

S.R. 105 successful on many fronts including increasing public 1 and physician awareness, providing patient support, 2 engaging and working with researchers from around the 3 world, and providing funding for the United States 4 registry for FMD; and 5 WHEREAS, there is still much to be accomplished 6 to increase awareness and encourage research of the 7 disease; and 8 WHEREAS, the FMDSA is organizing a global observance 9 of FMD, and during the month of March each year, 10 patients, medical professionals, and researchers in 11 various locations join together to focus attention on 12 FMD as a public health issue; NOW THEREFORE, 13 BE IT RESOLVED BY THE SENATE, That March 11, 2016, 14 be declared Fibromuscular Dysplasia Awareness Day in 15 the State of Iowa. 16 -3- LSB 5908XS (4) 86 pf/nh 3/ 3