House File 232 - Introduced HOUSE FILE 232 BY RUNNING-MARQUARDT , STAED , T. TAYLOR , and M. SMITH A BILL FOR An Act relating to the state comprehensive Alzheimer’s disease 1 response strategy. 2 BE IT ENACTED BY THE GENERAL ASSEMBLY OF THE STATE OF IOWA: 3 TLSB 2080HH (2) 85 pf/nh

H.F. 232 Section 1. NEW SECTION . 135P.1 Definitions. 1 As used in this chapter, unless the context otherwise 2 requires: 3 1. “Alzheimer’s disease” or “Alzheimer’s” means a 4 progressive, degenerative, fatal disorder that results in loss 5 of memory, loss of thinking and language skills, and behavioral 6 changes. “Alzheimer’s disease” includes related dementias 7 including vascular dementia, Parkinson’s disease, dementia with 8 Lewy bodies, frontotemporal dementia, Crutzfeldt-Jakob disease, 9 normal pressure hydrocephalus, and mixed dementia. 10 2. “Department” means the department of public health. 11 Sec. 2. NEW SECTION . 135P.2 Alzheimer’s disease —— 12 state-level coordination and comprehensive response strategy. 13 1. The department shall develop and administer, and 14 provide for state-level coordination of, a comprehensive 15 Alzheimer’s disease response strategy in accordance with the 16 recommendations of the stakeholder workgroup convened pursuant 17 to 2011 Iowa Acts, chapter 61. The response strategy shall 18 include development and monitoring of short-term and long-term 19 objectives and action steps to ensure that individuals with 20 Alzheimer’s disease have access to the highest quality and 21 most appropriate care at all stages of the disease and in 22 all settings across the service and supports continuum. The 23 response strategy may include prioritization of objectives 24 and action steps to most efficiently utilize resources and 25 funding. The department shall update the initial response 26 strategy biennially and shall submit a progress report annually 27 in January to the governor and the general assembly. 28 2. In providing state-level coordination, the department 29 shall integrate public and private resources and programs, 30 reduce duplication, evaluate programs and services to ensure 31 that evidence-based, high-quality programs and services are 32 available to maximize the positive impact for individuals with 33 Alzheimer’s and their families and caregivers, and promote 34 public awareness. 35 -1- LSB 2080HH (2) 85 pf/nh 1/ 6

H.F. 232 3. In developing the comprehensive Alzheimer’s disease 1 response strategy, the department shall do all of the 2 following: 3 a. Establish an Alzheimer’s disease coordinator position 4 in the department in a manner similar to those positions 5 that address other chronic conditions in the state. The 6 coordinator, in partnership with public and private entities 7 and the multidisciplinary advisory council convened pursuant to 8 paragraph “b” , shall do all of the following: 9 (1) Implement the recommendations of the Alzheimer’s 10 disease stakeholder workgroup convened pursuant to 2011 Iowa 11 Acts, chapter 61, and establish standards for the comprehensive 12 Alzheimer’s disease response strategy. 13 (2) Inform, educate, and empower the public regarding the 14 impact of Alzheimer’s disease, in order to increase awareness 15 of the disease and in particular the benefits of early 16 detection, while working to decrease the stigma associated with 17 Alzheimer’s disease. 18 (3) Monitor the prevalence of Alzheimer’s disease and 19 cognitive impairment in the state through data collection and 20 coordination efforts. Such data shall be made available to 21 and used to assist public and private efforts in developing 22 evidence-based programs and policies that address Alzheimer’s 23 disease. 24 (4) Evaluate, and promote the improved effectiveness, 25 accessibility, and quality of, clinical and population-based 26 Alzheimer’s services. The evaluation and promotion efforts 27 shall include coordination of services to reach rural and 28 underserved areas of the state. 29 (5) Ensure a competent public and private sector workforce 30 specific to the challenges of Alzheimer’s disease. The effort 31 shall include coordinating existing state efforts to develop, 32 implement, and evaluate curricula and training requirements 33 for providers of services who interact with individuals with 34 Alzheimer’s disease. 35 -2- LSB 2080HH (2) 85 pf/nh 2/ 6

H.F. 232 (6) Act as a liaison to the aging and disabilities resource 1 centers, area agencies on aging, Alzheimer’s association 2 chapters, the health and long-term care access advisory council 3 created by the department to implement the directives of 4 sections 135.163 and 135.164, and other entities to ensure 5 Alzheimer’s disease is appropriately addressed in the state. 6 (7) Secure public and private funding relating to dementia 7 to fulfill the duties specified under this chapter. 8 b. Convene a multidisciplinary advisory council. The 9 council shall assist and advise the department and the 10 coordinator; develop partnerships to provide coordination, 11 collaboration, and support for Alzheimer’s-related services 12 and programs throughout the state; and advocate on behalf of 13 persons with Alzheimer’s disease and their families. The 14 advisory council shall, at a minimum, include representation 15 from individuals with Alzheimer’s disease and their families; 16 caregivers and other providers of services and supports; 17 medical providers including primary and specialty care 18 providers, which shall include geriatricians, neurologists, 19 and others with expertise in Alzheimer’s disease; the 20 Alzheimer’s association; community-based organizations and 21 other organizations with interest or expertise in Alzheimer’s 22 disease; academic institutions and programs with a focus 23 on Alzheimer’s disease and dementia; and appropriate state 24 agencies including but not limited to the department on 25 aging, the department of human services, the department of 26 inspections and appeals, the department of public safety, and 27 the department of workforce development. The department shall 28 enlist private entities in providing staff support for the 29 council. 30 Sec. 3. REPEAL. Sections 135.171 and 231.62, Code 2013, 31 are repealed. 32 Sec. 4. INCORPORATION OF EXISTING STATE DUTIES. The 33 department of public health shall incorporate the requirements 34 specified in sections 135.171 and 231.62, Code 2013, into 35 -3- LSB 2080HH (2) 85 pf/nh 3/ 6

H.F. 232 the comprehensive Alzheimer’s disease strategy developed and 1 administered pursuant to this Act. 2 EXPLANATION 3 This bill relates to state-level coordination of and a 4 comprehensive response strategy for Alzheimer’s disease. The 5 bill creates a new Code chapter, Code chapter 135P, to direct 6 that the department of public health (DPH) is to develop and 7 administer, and provide for state-level coordination of, a 8 comprehensive Alzheimer’s disease response strategy. The bill 9 provides a definition of Alzheimer’s disease which includes 10 related dementias. 11 The bill directs DPH to develop and administer a 12 comprehensive Alzheimer’s disease response strategy, to update 13 the strategy biennially, and to submit a progress report 14 annually in January to the governor and the general assembly. 15 The response strategy may include prioritization of objectives 16 and action steps to most efficiently utilize resources and 17 funding. 18 In providing state-level coordination, DPH is directed 19 to integrate public and private resources and programs, 20 reduce duplication, evaluate programs and services to ensure 21 that evidence-based, high-quality programs and services are 22 available to maximize the positive impact for individuals with 23 Alzheimer’s and their families and caregivers, and promote 24 public awareness. 25 In developing and administering the comprehensive 26 Alzheimer’s disease response strategy, DPH is directed to 27 establish an Alzheimer’s disease coordinator within the 28 department and to convene a multidisciplinary advisory council. 29 The coordinator, in partnership with public and private 30 entities and the multidisciplinary advisory council, is 31 directed to implement the recommendations of the 2011 32 Alzheimer’s disease stakeholder workgroup, and establish 33 standards for the comprehensive Alzheimer’s disease response 34 strategy; inform, educate, and empower the public regarding 35 -4- LSB 2080HH (2) 85 pf/nh 4/ 6

H.F. 232 the impact of Alzheimer’s disease, in order to increase 1 awareness of the disease and in particular the benefits 2 of early detection, while working to decrease the stigma 3 associated with Alzheimer’s disease; monitor the prevalence 4 of Alzheimer’s disease and cognitive impairment in the state 5 through data collection and coordination efforts and make 6 the data available to assist public and private efforts in 7 developing evidence-based programs and policies that address 8 Alzheimer’s disease; evaluate, and promote the improved 9 effectiveness, accessibility and quality of, clinical and 10 population-based Alzheimer’s services, including coordination 11 of services to reach rural and underserved areas of the 12 state; ensure a competent public and private sector workforce 13 specific to the challenges of Alzheimer’s disease including 14 through coordination of state efforts regarding curricula and 15 training requirements for providers of services who interact 16 with individuals with Alzheimer’s disease; act as a liaison to 17 various entities to ensure Alzheimer’s disease is appropriately 18 addressed in the state; and secure public and private funding 19 relating to dementia to fulfill the duties specified under this 20 chapter. 21 The multidisciplinary advisory council is to assist and 22 advise the department and the coordinator; develop partnerships 23 related to Alzheimer’s-related services and programs throughout 24 the state; and advocate on behalf of persons with Alzheimer’s 25 disease and their families. The bill specifies the minimum 26 representation to be included in the advisory council. 27 The bill repeals the Code section relating to a directive 28 to DPH to analyze Iowa’s population to determine the existing 29 service utilization and future service needs of persons with 30 Alzheimer’s disease and similar forms of irreversible dementia 31 (Code section 135.171). The bill also repeals the Code 32 section relating to a directive to the department on aging to 33 review trends and initiatives to address the long-term living 34 needs of Iowans with Alzheimer’s disease and similar forms 35 -5- LSB 2080HH (2) 85 pf/nh 5/ 6

H.F. 232 of irreversible dementia, and to expand and improve training 1 and education of persons who regularly deal with persons with 2 Alzheimer’s disease and similar forms of irreversible dementia 3 (Code section 231.62). DPH is required to incorporate both of 4 these directives into the comprehensive Alzheimer’s disease 5 response strategy developed and administered under the bill. 6 -6- LSB 2080HH (2) 85 pf/nh 6/ 6